Helping Huntington's Disease Families Find Resources

Support

HDSA/HDSCN Support Groups are co-facilitated by LCSW or MSW from caregiver agencies to ensure confidential and professional oversight.

Care

Help in Finding the best Care
We focus on helping you find the appropriate clinic or facility for the care of your HD loved one.

Network

 Networking Resources
Many resources are necessary to manage HD. Referrals will help you make the best possible choices for your situation.

HD often affects the whole family, for generations

Caregiver Support Groups
To help HD families find the best possible support services, care professionals and community services for their HD loved ones. In some cases children are affected with Juvenile Huntington's disease. Our beloved JHD children require much more attention to support and care. HD Support & Care Network is here to help.
HD Support & Care Network, is a free service provided to HD families. Our mission is to help HD families find resources for support and care.

Support:  For the first time in partnership, HDSA/HDSCN Support Groups provide a safe and confidential place to defuse from the stress of caregiving and to find comfort and care options for their HD loved ones.
According to the Hereditary Disease Foundation, Huntington’s disease (HD) is a dominantly inherited, neurodegenerative disease causing involuntary movements, severe emotional disturbance and progressive cognitive loss over ten to twenty years. There is currently no cure. Each child of an affected parent has a 50% risk of inheriting the same lethal affliction. HD usually strikes between the ages of 30 to 40, in an individual’s prime productive years, though children as young as two years old and adults in their eighties may also develop symptoms. Most individuals in the late stages of illness require enormous assistance; they lose the ability to walk, talk, and feed themselves, but are still conscious, aware and know themselves and their families.

Our mission at HD Support & Care Network

Thank you sponsors and partners!